Monday, January 29, 2018

Not the child one may want but definitely the child one needs

Dear readers,


It has been a while since I have been able to blog. Life has been busy and I am grateful but that meant not being able to blog for a while. In this time, lots of new developments have happened, some good and some disappointing.

The good ones first:

Laksh is almost 6 months old, I am so excited to be planning his half birthday. Can't believe my baby boy is almost 6 months old. How time flies, it is amazing. We also finally had a newborn/baby photo shoot for Laksh which turned out pretty well. Here are some glimpses of it

  

                           


And now the disappointing part:
A lot of people in the DS community may have already heard about the special of Tom Segura rightly named "Diagraceful" that is to be aired on Netflix where he makes a joke about the usage of the word, “retard” and how it is no longer politically correct and questions if one should say ‘a person with the extra 21’st chromosome’? My question to him is, when has bullying been regarded as humor? When has mocking at someone's differences made you stronger or funnier? Why is it that you find the need to target a group of people who have never said a mean word about anyone and all they ever want is to be treated as human beings, just like anyone else.
When a fellow mom from the Down Syndrome community commented on his social media page, conveying her distasteful reaction to what he calls art, in response, Mr. Segura commented, “Netflix, please don’t take my special down. That’d be so retarded.” He not only denied making an attempt to try and understand what he said wrong or its ramifications, he went on to say it again, in an attempt to appear "funny" . I think it is weak that you can only get a few laughs from people at the expense of someone else, and in this case, many such individuals who had nothing to do with it whatsoever. I have been a part of this community for a short time but as passionate as any one else. No one chooses to have a child with special needs, but one can always choose to love, choose to accept and choose to being kind. As a parent, you may understand the overprotective instinct that comes with the territory, the need to protect your child from the tiniest of troubles, the need to be his or her advocate and making sure your child gets all the good things life has to offer. 
It surprises me that despite being lucky enough to have a child, you aren't lucky enough to learn acceptance and kindness for them. I feel sorry for you and your ignorance. Having a child with down syndrome makes you privy of unconditional love and have a deep appreciation for happiness. Always remember if you decide to have another child, and that child is blessed with an extra chromosome, the same people you mock now, would welcome you with open arms. That is why I feel that we all need to have such a blessing bestowed upon us so we can learn what it actually means to live life to the fullest.


I would urge everyone to please sign the petition and contact Netflix yourself to rate Tom Segura’s “comedy” show. You can reach them at PR@netflix.com or contact the CEO Reed Hasting at rred.hastings@netflix.com. 


Friday, January 5, 2018

God is good but are we?

Today, I came across this story of a beautiful baby girl called Norah Mae. She is this awesome and fierce girl who was born with Trisomy 13. Though she lived here for 5 days, her life continues to give strength to others. When I read her story that her mom writes at http://www.hellonorah.com/, I came to realize the strength these amazing mothers have. I also talked about this beautiful and strong baby Colton, who unfortunately passed away and is now in the arms of angels. His life has also been a source of encouragement and joy to so many others. You can read about him at https://www.facebook.com/ColtonStrongHeartWarrior/. These mothers and their extremely special babies have made me happy and yet made my cry so hard. I would sincerely like to thank you for the courage you showed and for sharing your stories with us. Thank you for letting us into your lives and giving us a chance to get to know your precious babies.


Since before I became a mother, I have always been very sensitive about what others say and very protective about myself and my loved ones. After Laksh came in our lives, these instincts are on a all time high. My heart aches so much for other mothers and their babies and it feels so much joy for them as well. Laksh has already taught us so much that most people take for granted, even most parents. Laksh showed us this whole new world filled with babies with different abilities and yet each one of them, simply perfect.

When Laksh was diagnosed after birth and had to spend over 60 days in the NICU, I remember struggling with it and being angry with the universe and God for doing this to my sweet baby. Everytime Laksh had to get his IV changed, or pricked and prodded;  he would cry for the longest time and my heart would break and my anger would grow. I hate to admit but I was angry at God. I thought that he was punishing my baby because of some fault of mine. At that time, I failed to realize that God is good and God is our creator. So if we hurt, he hurts. He would never hurt us and always trust Him, as only He knows what His plans are. Since then, I have come to believe very strongly in God's plan and believe He has a greater purpose for Laksh and us. I think, through Laksh, He is teaching us to be better people and through this blog, I am trying to share more about Laksh with the world.


Laksh has taught me how to see each person as an individual and to respect their choices. How we should try to understand their journey. How to be sensitive to others and what they are going through. Being grateful for what God thought you were able to handle and blessed you with. So let our babies teach us some very valuable lessons. Next time, when you see someone in need, be the one to help them. When you see someone grieving, try to be the one to comfort them, and if you can't at least do not add to it. When you see someone being treated unfairly, raise your voice for them. Even though, I know and believe that God is good, sometimes, I still wonder, then why do little babies have to die? Why do little babies have to suffer? Why do people have to go hungry when there is so much food in the world? Why are differences not celebrated but mocked and bullied? I hope someday, we get to see the world where kindness is not an unexpected gesture would simply the way to live.

Wednesday, January 3, 2018

New year; Old me?

Dear readers,

Happy 2018 everybody. Hope this year brings you all joy, love and good health, everything else will fall into place in time. I would like to thank everyone for their support so far and I hope to keep getting more love for Laksh and our little venture; this blog.

It seems like we just celebrated Christmas and in a blink of the eye, its already 2018. Christmas has always been the best part of the year. All the lights, and festivities around me always cheers me up. Recently, I have started to feel the need to start traditions, things that I want Laksh to look forward to. Things like, baking cookies for Christmas together, opening gifts Christmas morning, wearing matching family PJ's, taking family trips across the globe, taking a minute to reflect and being grateful, give to others what we can, being kind and smiling a lot.

I have never been the kind of person to wait for new year to make resolutions, if I want to change something I do it right away. I am also someone who likes to celebrate and capture every moment that I can, because that is what makes life worth living, at least that is what I feel. My sisters and I have always been those people who love to celebrate and cherish each other and the people around us.

January 1st marked the beginning of this year but for us, it also marked the day our baby boy turned 5 months old. We spent the day celebrating his 5 month birthday instead. Hubby and I baked a chocolate cake for Laksh and it was such a fun experience. This lead me to think of other ways to be able to have more fun, be responsible and also lead a more meaningful life. To live life and not merely exist.




  • Read a book to Laksh every night
  • Laugh at small things instead of getting angry 
  • Try to get quality sleep time
  • Family movie night with popcorn (pop corn not optional)
  • Go for a brisk walk (even when its freezing cold)
  • Listen to music and dance
  • Lite a scented candle
  • Drink more water
  • Try new recipes
  • Don't freak out over every small thing and go with the flow (more of me than anyone else)
  • Give someone a compliment and mean it 
  • Be helpful and kind to strangers
  • Be more patient
  • And remove the Christmas tree before the end of this month. 😉


As we start a new year, I hope people learn to be more tolerant, kind, open-minded, accepting, friendly, understanding, polite, and kind. I know I said kind twice, that’s how important it is. If there is only one thing you want to take away from this blog today, then let it be kindness.

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