Showing posts with label down syndrome online community. Show all posts
Showing posts with label down syndrome online community. Show all posts

Friday, November 24, 2017

21 things I am grateful for this Thanksgiving

In this busy life, it is easy to forget what things we have going for us and keep focusing on things that are not. For instance, focusing on not getting the promotion you were gunning for and forgetting to be grateful for having a job. Getting upset over not being able to get that branded bag but forgetting to be grateful for the other bags you already have. Crying over baby having diagnosed with down syndrome at birth instead of being grateful for this tiny miracle you created.(see what I did there 👶❤)

I know this blog is not completely from Laksh's point of view or even fully about him like it usually is, but I needed to put this in writing for him to see when he grows up. It being thanksgiving weekend, I decided to come up with reasons 21 that I am thankful/grateful for this life that God gave us. (21 has become my most favorite number recently, oh & also, it is my birth date)


  1. We have Laksh and he has us
  2. We have a roof over our heads
  3. We have food in our bellies
  4. We have love in our house
  5. We have people that care about us
  6. Laksh has both sets of grand parents
  7. Laksh has two older sisters (cousins but closer than the real deal), aunts and uncles
  8. Laksh has a fur brother
  9. We are healthy
  10. We have an amazing online DS community, our extended family
  11. We have jobs so we can provide for our baby
  12. We have access to great medical care
  13. We became parents
  14. We saw his first smile
  15. We heard his first cry
  16. We celebrated his first Rakhsha Bandhan
  17. We celebrated his first Diwali
  18. We celebrated his first Bhai Dhuj
  19. We celebrated his first Halloween 
  20. We celebrated his first thanksgving
  21. And last but not least, we will have the rest of our lives to see his many firsts and seconds and more.





Never forget to be kind to others as kindness is all that matters. Happy Thanksgiving from our family to yours.




Monday, October 30, 2017

Is it down syndrome or he is just being a baby?


Laksh is almost 3 months old. As I have mentioned before, we are waiting for his EIP to start and in the meanwhile we have follow ups with his GI surgeon, cardiology, ENT and regular pediatrician to keep us busy. This being my first baby, I find myself tempted to google what a three month old baby can do and then compare it and see what our baby is doing but then I stop myself. I know that is a rabbit hole, and if I fall into it, I am only going to fall deeper and deeper. 

Sometimes when I look at Laksh I wonder, is he looking too dazed or is he just being a baby? Is it his down syndrome that is making him not interested in smiling often or is he just being a baby? Every time he doesn't eat his entire meal, I worry if it is something to do with his abdominal surgery or he is just being a baby? Every time he doesn't respond to my voice I wonder, is it his down syndrome or is he just being a baby?


    




Every time he is awake, I wonder should I keep talking to him so he can learn more or is it okay to be content in just hanging out with him once in a while? Every time he is on the boppy I feel should I give him something to play with so he is working on his fine motor skills or is it okay be content in just hanging out with him once in a while? Whenever I lay him down to change his diaper, do I need to keep his brain stimulated by playing Mozart lullabies or is it okay be content in just hanging out with him once in a while?






I accept that there have been days where I forget he has down syndrome or that it is just a small part of who is that it does not even matter but then there are days where it seems so prominent in everything he does. When people talk about how tall he would be because his parents are tall, I wonder would that still be true as down syndrome tends to affect overall growth? When people say how smart he would be as his parents are highly educated, I wonder would that still be true as down syndrome tends to affect overall cognition? With so many thoughts running in my mind that unfortunately I forget to get amazed by this tiny miracle that God helped us create. Now a days, whenever my mind starts to wander, I remind myself to not put any limitations on him and believe in him. He can achieve whatever he sets his mind to because he is amazing and no such thing as an extra chromosome can stop him. If anything this extra chromosome is what is going to help him be him.

To the makers of the movie Mimi

First of all, I would like to thank you for opening the dialogue about Down syndrome in our Indian society.  Thank you for showing that a ch...